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Re: Re: questionnaire
Submitted by susie on 11/Dec/2008 in reply to Re: questionnaire posted by Georgene on 11/Dec/2008
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I think a questionnaire is a brilliant idea!!!! Once the questions are decided, we could have a section on the site devouted to this. I would also like to have a registry for all FHC patients so we can start taking a count and show that this disease deserves attention! Let's start comming up with questions. I'll catalogue them!!!!! Yes we will hopefully soon be asking for tissue samples. If anyone is having surgery to remove a primary or lymphatic tumor, PLEASE ask that tissue samples be saved!!!!!!! Susie
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