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Re: I'm new here/my story
Submitted by essgirl <slett28@aol.com> on 30/Jun/2010 in reply to I'm new here/my story posted by Casey on 25/Jun/2010
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Message:
Hi Casey.
Sorry you havent had more responses on here,it has been very quiet on here lately.
My story is very similar to yours, I was also originally diagnosed with FNH and didnt find out till a month after my op that it was in fact cancer.
I wrote a similar post to yours on here just after I was diagnosed.
I was also told that they had got it all and all they were going to do for me was to scan me every few months to make sure it hadnt come back.
At first I had a hard time getting my head round it,and as you have probably found out yourself there is not much info available on the internet.
This website helped me a great deal,I read through all the posts and have had some very good responses whenever ive asked a question on here.
I am in England so the treatments etc are sometimes slightly different here,for example chemo is not usually given here for this type of cancer.
I am in touch with a few more people who have been diagnosed with Fibrolamellar.We are thinking of starting a facebook group for us to share our stories and possible treatments etc.Let me know if you are interested in joining.
Regards
Essgirl
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