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Re: Re: Re: Re: Re: Re: Re: Re: Re: Sue
Submitted by susie on 05/Dec/2008 in reply to Re: Re: Re: Re: Re: Re: Re: Re: Sue posted by Jodi on 05/Dec/2008
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Jodi: Go girl!!!!! You were wonderful-so eloquent!!!! You look great and that baby of yours is darling!!!! Thank you for bringing awareness to FHC!!!!
I'm glad you found an oncologist who's willing to learn about FHC. Please have him/her call some of the docs on our web site. Ben had quite extensive lymphatic metastisis and we just got the results of his latest CT scan--he's clean!!!!!! I'm not a doctor--- I really think you need to be on a treatment protacol to prevent further metastisis. Our oncologist at UPENN (on resource page) has consulted with other docs in the past--he has been successful in stabalizing Ben's disease. If you call, most likely the doctors on the resource page won't respond--they're more likely to speak with another doctor. PUSH!!!!! If your doctor won't get the info-find another doctor who will!!! Stay strong and give your baby a big hug from me--Tell him I think his mother is awesome!!!! Susie
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