For Fibrolamellar Hepatocellular Carcinoma

deLIVER a cure is a non-profit foundation set up to fund research for this rare form of cancer. Fibromalellar Hepatocellular Carcinoma is a rare variant of liver cancer that most often occurs in individuals between the ages of 15 and 25 years of age.  Unlike traditional liver cancer, hepatitis, drug use, and cirrhosis of the liver are not causations of this disease.

The worldwide incidence is approximately 200 cases per year worldwide and there is no successful form of treatment other than surgical resection of the liver.

There are not enough patients with this disease to conduct clinical trials. Typically, these patients are not admitted to clinical trials for traditional liver cancer because this disease does not manifest elevated Alpha Feta protein levels as found in all other types of liver cancer and thus is required as a qualifier by the National Cancer Institute which regulates most clinical trials in this country.  Because there have been no clinical trials on these patients, there is no recognized form of chemo or radiation treatment recognized by the FDA.